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Fibrous Dysplasia

Fibrous dysplasia is a rare bone disorder that causes fibrous scar-like tissue to develop in the bone, weakening it and potentially causing deformities or fractures. In most cases, a single bone is affected – often the skull.  The condition is considered genetic because it occurs during a baby’s development in the uterus, but it is not hereditary. It typically goes undetected until adolescence or young adulthood, when symptoms - commonly pain - begin to surface. Fibrous dysplasia is linked to birth marks (cafe-au-lait spots); endocrine problems, including premature puberty; hyperthyroidism; low blood phosphorus; secretion of excess growth hormone, and, very rarely, neonatal Cushing’s disease. There is no cure, but fibrous dysplasia can be managed with surgery.

Best in Care           

The AdventHealth Neuroscience Institute is a state-of-the-art facility for adults and children affected by fibrous dysplasia. We specialize in minimally invasive treatments that use laser technology to remove affected tissue in the bone. These advanced techniques often minimize damage to surrounding tissue and result in less scarring and pain. Using image-guided stereotactic neurosurgery, our specialists can view 3-D images of fibrous tissue during surgery making it easier to remove. Minimally invasive surgery helps manage symptoms, including pain, and results in quicker recovery because no incision is made.